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Center for Limb Differences Resources

Center for Limb Differences at Mary Free Bed Rehabilitation Hospital.

The Center for Limb Differences (CLD) is committed to educating patients, families, and healthcare professionals about limb differences. Please note that the center includes the following resources to assist you in your search for references, support, and information about children with limb differences.


► Center for Limb Differences Treatment Team
► Contact the Center for Limb Differences

Handbooks

As part of the CLD's commitment to education we have developed a series of handbooks, which include the following titles:

  • Children with Limb Differences (birth to 5 years)
  • Children with Limb Differences (6 to 12 years)
  • Adolescents with Limb Differences
  • Children with Limb Differences: A Handbook for Teachers
  • Children with Hand Differences: A Guide for Families
  • Guia Para Familias de Ninos con Extremidades con Diferencias
  • Your Personal Best - A handbook written and geared toward young amputees. Intended for children to use under the guidance of physical therapists. The handbook's fun format offers several levels of exercises, and guides the child through the healing process.

For information about services, or to purchase one of the handbooks, fill out an order form or contact us at:

Center for Limb Differences
616.454.7988 (phone)
616.356.1903 (fax)
LimbCenter@MaryFreeBed.com

Newsletter

Annual 2009
Spring/Summer 2008
Fall/Winter 2007
Spring/Summer 2007

Teasing Handouts

Teasing Happens: How to Make Friends
Teasing Happens: What to Do
Teasing Happens: Tips for Parents
Teasing Happens: Tips for Teachers
Teasing: Books for Children
Tips for Encouraging Self Esteem in Teens with Disabilities

Parent and Peer Resources

How to Organize an Effective Parent/Advocacy Group and Move Bureaucracies
How to Get Services by Being Assertive
Does Your Child Have Special Education Needs
How to Participate Effectively in Your Child’s IEP Meeting

Family Resource Center on Disabilities
20 E. Jackson Blvd, Room 300
Chicago, IL 60604
Phone: 312.939.3513
TDD: 312.939.3519
Fax: 312.939.7297
e-mail: info@frcd.org
http://www.frcd.org/

National Peer Network
Amputee Coalition of America
Attn: NPN
900 East Hill Avenue, Suite 205
Knoxville, TN 37915-2566
Phone: 888.AMP.KNOW (267.5669)
Fax: 865.525.7917
www.Amputee-Coalition.org/NPN_About.html

Resource Organizations

Amputee Coalition of America
900 E. Hill Avenue, Suite 205
Knoxville, TN 37915-2566
Phone: 888.AMP.KNOW (267.5669)
Fax: 865.525.7917
www.Amputee-Coalition.org

Association of Children's Prosthetic-Orthotic Clinic (ACPOC)
6300 N. River Road, Suite 727
Rosemont, IL 60018-4226
Phone: 847.698.1637
Fax: 847.823.0536
www.ACPOC.org

Cancer Information Service of the National Cancer Institute
NCI Public Inquiries Office
6116 Executive Blvd
Room 3036A
Bethesda, MD 20892-8322
Phone: 800.4.CANCER (422.6237)
www.Cancer.gov

Candlelighters Childhood Cancer Foundation
PO Box 498
Kensington, MD 20895-0498
Phone: 800.366.2223 or 301.962.3520
Fax: 301.962.3521
e-mail: Staff@Candlelighters.org
www.Candlelighters.org

Federation for Children with Special Needs
1135 Tremont Street, Suite 420
Boston, MA 02120
Phone: 617.236.7210
Fax: 617.572.2094
e-mail: FCSNinfo@FCSN.org
www.FCSN.org

National Dissemination Center for Children with Disabilities
PO Box 1492
Washington, D.C. 20013
Phone: 800.695.0285
Fax: 202.884.8441
e-mail: NICHCY@AED.org
www.NICHCY.org

Recreational Organizations

Disabled Sports USA
451 Hungerford Drive, Suite 100
Rockville, MD 20850
Phone: 301.217.0960
Fax: 301.217.0968
e-mail: Information@DSUSA.org
www.DSUSA.org

Wilderness Inquiry
808 14th Avenue SE
Minneapolis, MN 55414-1516
Phone: 800.728.0719 or 612.676.9400
Fax: 612.676.9401
e-mail: Info@WildernessInquiry.org
www.WildernessInquiry.org

National Sports Center for the Disabled
Winter Park Resort
PO Box 1290
Winter Park, CO 80482
Phone: 970.726.1540
Fax: 970.726.4112
Denver Office:
1801 Bryant ST, Ste 1500
Denver, CO 80204
Phone: 303.293.5711
Fax: 303.293.5448
e-mail: Info@NSCD.org
www.NSCD.org

Camps

American Camp Association
5000 State Road 67 North
Martinsville, IN 46151-7902
Phone: 765.342.2065
www.ACACamps.org

Children’s Oncology Camping Association International
P.O. Box 41433
Des Moines, IA 50311
515.669.4580
e-mail: AdministrativeTeam@COCA-Intl.org
www.COCAI.org

Easter Seals
230 W. Monroe Street, Suite 1800
Chicago, IL 60606
Phone: 800.221.6827 or 312.726.6200
TTY: 312.726.4258
Fax: 312.726.1494
www.EasterSeals.com

Links

www.AASRA.ab.ca
Alberta Amputee Sport and Recreation Association

www.Amputee-Coalition.org
Amputee Coalition of American, National Limb Loss Information Center

www.ClosingTheGap.com
Assistive Technology Resources for Children and Adults with Special Needs

www.HelpingHandsGroup.org
Providing support, sharing experiences, and supplying information to families of children with upper limb differences

www.LimbDifferences.org
An on-line resource for families and friends of children with limb differences

www.OnTheOtherHand.org
Information for families and children with hand differences

www.Reach.org.uk
Reach, the Association for Children with Hand or Arm Deficiency

www.SuperHands.us
SuperHands Network, for kids and adults with unilateral congenital below elbow deficiency

www.ToysRBob.com/OneArm/
Linda's one-armed website, ADL tips with photos

www.WarAmps.ca
The War Amps and CHAMP program of Canada

The CLD does not support or endorse any of the organizations or references listed and is not responsible for the content included on these links.

© 2014 Mary Free Bed Rehabilitation Hospital., Grand Rapids, MI | 1.855.MFB.REHAB
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