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Center for Limb Differences Resources

Center for Limb Differences at Mary Free Bed Rehabilitation Hospital.

The Center for Limb Differences (CLD) is committed to educating patients, families, and health care professionals about limb differences. Please note that the center includes the following resources to assist you in your search for references, support, and information about children with limb differences.


► Center for Limb Differences Treatment Team
► Contact the Center for Limb Differences

Handbooks

As part of the CLD's commitment to education we have developed a series of handbooks, which include the following titles:

  • Children with Limb Differences (birth to 5 years)
  • Children with Limb Differences (6 to 12 years)
  • Adolescents with Limb Differences
  • Children with Limb Differences: A Handbook for Teachers
  • Children with Hand Differences: A Guide for Families
  • Guia Para Familias de Ninos con Extremidades con Diferencias

For information about services, or to purchase one of the handbooks, fill out an order form or contact us at:

Center for Limb Differences
616.454.7988 (phone)
616.356.1903 (fax)
limbcenter@maryfreebed.com

Teasing Handouts

Teasing Happens: How to Make Friends
Teasing Happens: What to Do
Teasing Happens: Tips for Parents
Teasing Happens: Tips for Teachers
Teasing: Books for Children
Tips for Encouraging Self Esteem in Teens with Disabilities

Parent and Peer Resources

Family Resource Center on Disabilities
“Providing parents of children with disabilities with information, training, assistance, and support.”
20 E. Jackson Blvd, Room 300
Chicago, IL 60604
Phone: 312.939.3513
TDD: 312.939.3519
Fax: 312.854.8980
e-mail: info@frcd.org
www.frcd.org

National Peer Network
Amputee Coalition of America
Attn: NPN
Headquarters:
9303 Center St, Ste 100
Manassas, VA 20110
Branch Office:
900 E. Hill Avenue, Suite 290
Knoxville, TN 37915-2566
Phone: 888.AMP.KNOW (267.5669)
Fax: 865.525.7917
www.amputee-coalition.org/npn_about.html

Resources

Amputee Coalition of America
Headquarters:
9303 Center St, Ste 100
Manassas, VA 20110
Branch Office:
900 E. Hill Avenue, Suite 290
Knoxville, TN 37915-2566
Phone: 888.AMP.KNOW (267.5669)
Fax: 865.525.7917
www.amputee-coalition.org

Association of Children's Prosthetic-Orthotic Clinic (ACPOC)
6300 N. River Road, Suite 727
Rosemont, IL 60018-4226
Phone: 847.698.1637
Fax: 847.823.0536
Email: acpoc@aaos.org
www.acpoc.org

Cancer Information Service of the National Cancer Institute
NCI Public Inquiries Office
6116 Executive Blvd, Suite 300
Room 3036A
Bethesda, MD 20892-8322
Phone: 800.4.CANCER (422.6237)
www.cancer.gov

America Childhood Cancer Organization
10920 Connecticut Ave., Suite A
Kensington, MD 20895
Phone: 855.858.2226 or 301.962.3520
Fax: 301.962.3521
Contact info here
www.acco.org/

Federation for Children with Special Needs
The Schrafft Center
529 Main St, Ste 1102
Boston, MA 02129
Phone: 617.236.7210
Fax: 617.241.0330
e-mail: fcsninfo@fcsn.org
www.fcsn.org

National Dissemination Center for Children with Disabilities (NICHCY)
1825 Connecticut Ave NW
Washington, D.C. 20009
Phone: 800.695.0285
Fax: 202.884.8441
e-mail: nichcy@aed.org
www.nichcy.org

Recreation & Camps

American Camp Association
5000 State Road 67 North
Martinsville, IN 46151-7902
Phone: 765.342.8456
Fax: 765.342.3065
www.acacamps.org

Children’s Oncology Camping Association International (COCA-I)
www.cocai.org
Disabled Sports USA
451 Hungerford Drive, Suite 100
Rockville, MD 20850
Phone: 301.217.0960
Fax: 301.217.0968
e-mail: Information@dsusa.org
www.dsusa.org

Easter Seals
233 S. Wacker Dr., Suite 2400
Chicago, IL 60606
Phone: 800.221.6827 or 312.726.6200
TTY: 312.726.4258
Fax: 312.726.1494
www.easterdeals.com

National Sports Center for the Disabled
Winter Park Resort
PO Box 1290
Winter Park, CO 80482
Phone: 970.726.1518
Denver Office:
1801 Mile High Stadium Cir, Ste 1500
Denver, CO 80204
Phone: 303.316.1518
Fax: 303.293.5448
e-mail: Info@nscd.org
www.nscd.org

Wilderness Inquiry
808 14th Avenue SE
Minneapolis, MN 55414-1516
Phone: 800.728.0719 or 612.676.9400
Fax: 612.676.9401
e-mail: Info@wildernessinquiry.org
www.wildernessinquiry.org

Links

www.aasra.ab.ca
Alberta Amputee Sport and Recreation Association

www.amputee-coalition.org
Amputee Coalition of American, National Limb Loss Information Center

www.closingthegap.com
Assistive Technology Resources for Children and Adults with Special Needs

www.helpinghandsgroup.org
Connecting families of children with upper limb loss

www.limbdifferences.org
An on-line resource for families and friends of children with limb differences

www.reach.org.uk/
Reach, Association for Children with Upper Limb Deficiency

www.steps-charity.org.uk
“Supporting children and adults affected by a lower limb condition"

www.superhands.us
SuperHands Network, for kids and adults with unilateral congenital below elbow deficiency

www.toysrbob.com/OneArm/
Linda's one-armed website, ADL tips with photo

www.waramps.ca
The War Amps and CHAMP program of Canada

The CLD does not support or endorse any of the organizations or references listed and is not responsible for the content included on these links.

© 2014 Mary Free Bed Rehabilitation Hospital., Grand Rapids, MI | 1.855.MFB.REHAB
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